Patient Education and Participation (PEP)

Patient Education and Participation (PEP)

About

The research group for Patient Education and Participation do research on patients' and users' perspective on the health care services and factors that promotes a patient centred and learning service. We are a broad research group with members from different subject areas and departments. This is reflected in the variation of themes studied and research methods used.

Informasjon

The perspective of patients and users are decisive for further development of the quality of the health care services. In a patient centred health care service, there shall be collaboration and harmonisation between the patients and users lived experience and the professional competency of the health care workers. Still, it is well documented that many services are not optimally tailored for this. Thus, we do research on development and effect of different interventions, on patients and users lived experience and how this can be integrated, and on patient and user involvement in the services.

We use many different research methods in our research projects. Most projects use a combination of quantitative and qualitative methods. A typical example is the use of randomised controlled trial (RCT) and qualitative studies to investigate both objective effect and subjective experiences of different interventions. A main strength of the research group is to do project where different approaches re used to investigate an initiative from different perspectives.

The research group meets regularly once a week to give input to each other's work across themes and research methods. This provides an important arena for learning about the research process and the craft of doing research across different areas.

The research group collaborates with other researchers both nationally and internationally. We have regularly had visiting researchers from Norway and abroad staying with us for shorter or longer periods. We attach great importance to having close contact with the practice field. Many of the members in the research group are or have been clinicians, which has contributed to strengthen and maintain exchange of competency between research and practice.

The research group was established in 2005 by Aslak Steinsbekk. Since then, the group has meet weekly and had a steady high activity with between 7-14 active members at any time. Most of the members have been PhD candidates who either have continued to be active members of the group or gone on to work elsewhere.

The research group organised from 2005 to 2019 regional research meetings several times each semester with up to 50 people on the e-mail list. The purpose of these meetings was to have a forum where researchers could present their project to get input from other researchers or experts from the practice field with similar area of interest. An overview of themes for the different meetings is available (mostly in Norwegian).

The first years, the research projects mainly concerned effect of and experience with patient education and involvement. Such projects, nearly all done as randomised controlled trials (RCT) and qualitative studies, have been done e.g. in the are of diabetes, mental health, chronic pain, rheumatism and lung diseases. The thematical area has broadened over time, with research on different types of patient experiences, pedagogical questions, register based research, medicine use etc. being if focus in different projects.

Nina Elisabeth Klevanger (2021) Navigating complexity in the return-to-work process: the experiences of rehabilitation therapists, employees and supervisors.

https://ntnuopen.ntnu.no/ntnu-xmlui/handle/11250/2731310

Torunn Hatlen Nøst (2019) Chronic pain self-management. expectations towards and effect of chronic pain self-management intervention at a healthy life centre in public primary care.

https://ntnuopen.ntnu.no/ntnu-xmlui/handle/11250/2621977

Karianne Berg (2018) Collaboration in aphasia rehabilitation. the perspective of speech-language pathologists and persons with stroke-induced aphasia.

https://ntnuopen.ntnu.no/ntnu-xmlui/handle/11250/2484912

Elin Høien Bergene (2018) Use of oral medicines for short-term illnesses in children - perspectives on prescribing, dispensing and administration.

https://ntnuopen.ntnu.no/ntnu-xmlui/handle/11250/2591388

Hege Therese Bell (2018) Drug therapy management in community-based elderly with focus on fall-risk-increasing-drugs.

https://ntnuopen.ntnu.no/ntnu-xmlui/handle/11250/2484887

Julia Paola Menichetti Delor (2018), Patient engagement support for older adults: Development and implementation of an intervention in an integrated-care context.

http://tesionline.unicatt.it/handle/10280/39107

Mariela Loreto Lara-Cabrera (2017) The effects of peer co-led educational group interventions in mental health settings.

https://ntnuopen.ntnu.no/ntnu-xmlui/handle/11250/2432548

Margret Hrönn Svavarsdóttir (2016) Competence development in patient education. The perspective of health professionals and patients with experience in patient education in cardiac care.

https://ntnuopen.ntnu.no/ntnu-xmlui/handle/11250/2379573

Kjersti Grønning (2012) Patient education and chronic inflammatory polyarthritis – coping and effect.

https://ntnuopen.ntnu.no/ntnu-xmlui/handle/11250/264511

Lisbeth Østgaard Rygg (2012) Group education for patients with type 2 diabetes – needs, experiences and effects.

https://ntnuopen.ntnu.no/ntnu-xmlui/handle/11250/264513

Marit By Rise (2012) Lifting the veil from user participation in clinical work – what is it and does it work?

https://ntnuopen.ntnu.no/ntnu-xmlui/handle/11250/264484

Jørgen Alexander Urnes (2009) Patient education in gastro-oesophageal reflux disease. validation of a digestive symptoms and impact questionnaire and a randomised controlled trial of patient education.

https://ntnuopen.ntnu.no/ntnu-xmlui/handle/11250/264398

Research activity
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Publikasjoner Forfattere Tidsskrift År
The Role of Chief Medical officers in making Public Health Overview Documents in Norwegian Municipalities. A qualitative Study Dag-Helge Rønnevik, Betty J. Pettersen, Anders Grimsmo, Aslak Irgens Steinsbekk ...flere forfattere BMC Public Health 2024
Validity of the Johns Hopkins Adjusted Clinical Groups system on the utilisation of healthcare services in Norway: a retrospective cross-sectional study Rannei Hosar, Gro Rosvold Berntsen, Aslak Irgens Steinsbekk ...flere forfattere BMC health services research 2024
Getting an outsider’s perspective - sick-listed workers’ experiences with early follow-up sessions in the return to work process: a qualitative interview study Martin Inge Standal, Vegard Stolsmo Foldal, Lene Aasdahl, Egil Andreas Fors, Marit Solbjør ...flere forfattere BMC health services research 2024
Access to colorectal cancer screening for Pakistani immigrants in Norway – a qualitative study Nadia Iqbal, Paula Berstad, Marit Solbjør, Esperanza Diaz, Elżbieta Czapka, Solveig Hofvind, Sameer Bhargava ...flere forfattere BMC health services research 2024
Perceived benefits and challenges one year after receiving brief therapy in a district psychiatric centre. An exploration of patients’ and GPs’ experiences: A qualitative study Hilde Våbenø Markussen, Lene Aasdahl, Petter Viksveen, Marit By Rise ...flere forfattere PLoS ONE 2024
Exploring Healthcare Paradoxes in Hospital Haemodialysis—A Qualitative Study Tone Andersen-Hollekim, Torstein Hole, Marit Solbjør ...flere forfattere Health Expectations 2024
Learning evidence-based practice by writing the bachelor's thesis – A prospective cohort study in undergraduate nursing education Guro Karlsholm, Linn Beate Strand, Beate Andre, Kjersti Grønning ...flere forfattere Nurse Education Today 2024
Men's sociotechnical imaginaries of artificial intelligence for prostate cancer diagnostics – A focus group study Emilie Hybertsen Lysø, Maria Bårdsen Hesjedal, John-Arne Skolbekken, Marit Solbjør ...flere forfattere Social Science and Medicine 2024
Changes in health related quality of life in mothers with inflammatory joint disease from year 2000 to 2020 – a comparative cross-sectional study Hege Svean Koksvik, Ingrid Nilssen, Bente Jakobsen, Hilde Bjørngaard, Marianne Wallenius, Kjersti Grønning ...flere forfattere Frontiers in Global Women's Health 2024
Supervising Undergraduate Nursing Students on Their Bachelor's Thesis. A Qualitative Study Guro Karlsholm, Beate Andre, Kjersti Grønning ...flere forfattere SAGE Open Nursing 2024
Valuing good health care: How medical doctors, scientists and patients relate ethical challenges with artificial intelligence decision-making support tools in prostate cancer diagnostics to good health care Maria Bårdsen Hesjedal, Emilie Hybertsen Lysø, Marit Solbjør, John-Arne Skolbekken ...flere forfattere Sociology of Health and Illness 2024
Development of Recommendations for the Digital Sharing of Notes With Adolescents in Mental Health Care: Delphi Study Martine Stecher Nielsen, Steinsbekk, Torunn Hatlen Nøst ...flere forfattere JMIR Mental Health 2024
An Artificial Intelligence–Based App for Self-Management of Low Back and Neck Pain in Specialist Care: Process Evaluation From a Randomized Clinical Trial Anna Marcuzzi, Nina Elisabeth Klevanger, Lene Aasdahl, Sigmund Østgård Gismervik, Kerstin Bach, Paul Jarle Mork, Anne Lovise Nordstoga ...flere forfattere JMIR Human Factors 2024
Prevalence of substance use disorder diagnoses in patients with chronic pain receiving reimbursed opioids: An epidemiological study of four Norwegian health registries Torunn Hatlen Nøst, Svetlana Skurtveit, Ingvild Odsbu, Line Pedersen, Petter Chr. Borchgrevink, Marte Handal ...flere forfattere Scandinavian Journal of Pain 2024
Nurses’ and Physicians’ Experiences After Implementation of a Quality Improvement Project to Improve Sepsis Awareness in Hospitals Lise Tuset Gustad, Inger-Lise Bangstad, Malvin Torsvik, Marit By Rise ...flere forfattere Journal of Multidisciplinary Healthcare 2024
Healthcare professionals’ experiences of interdisciplinary collaboration in pain centres – A qualitative study Torunn Hatlen Nøst, Tone Dahl-Michelsen, Hanne Aandahl, Aslak Irgens Steinsbekk ...flere forfattere Scandinavian Journal of Pain 2024
Developing a virtual reality (VR) application for practicing the ABCDE approach for systematic clinical observation Helen Berg, Ekaterina Prasolova-Førland, Aslak Irgens Steinsbekk ...flere forfattere BMC medical education 2023
Acceptance and use of a clinical decision support system in musculoskeletal pain disorders – the SupportPrim project Fredrik Granviken, Ingebrigt Meisingset, Ottar Vasseljen, Kerstin Bach, Anita Formo Bones, Nina Elisabeth Klevanger ...flere forfattere BMC Medical Informatics and Decision Making 2023
The effect of using desktop VR to practice preoperative handovers with the ISBAR approach: a randomized controlled trial Eva Mari Andreasen, Helen Berg, Aslak Irgens Steinsbekk, Rune Høigaard, Kristin Haraldstad ...flere forfattere BMC medical education 2023
Chronic pain self-management interventions in primary care – does it make any difference? A qualitative study Ragnhild Hestmann, Ola Bratås, Kjersti Grønning ...flere forfattere BMC health services research 2023
Views on patient portal use for adolescents in mental health care - a qualitative study Martine Stecher Nielsen, Aslak Irgens Steinsbekk, Torunn Hatlen Nøst ...flere forfattere BMC health services research 2023
Effectiveness of 'motivational interviewing' on sick leave: a randomized controlled trial in a social insurance setting Lene Aasdahl, Martin Inge Standal, Roger Hagen, Marit Solbjør, Gunnhild Bagøien, Heidi Fossen, Vegard Stolsmo Foldal, Johan Håkon Bjørngaard, Tarjei Rysstad, Margreth Grotle, ...flere forfattere Scandinavian Journal of Work, Environment and Health 2023
Association between Johns Hopkins Adjusted Clinical Groups risk scores and self-reported outcome measures: an observational study among individuals with complex or long-term conditions in Norway Rannei Hosar, Aslak Irgens Steinsbekk ...flere forfattere BMJ Open 2023
Interest in using patient portals among adolescents in mental health care - a cross-sectional study Martine Stecher Nielsen, Aslak Irgens Steinsbekk, Torunn Hatlen Nøst ...flere forfattere BMC health services research 2023
Interest in and Experience with the Use of Patient Portals Among Adolescents in Mental Health Care Martine Stecher Nielsen, Aslak Irgens Steinsbekk, Torunn Hatlen Nøst ...flere forfattere Studies in health technology and informatics 2023
How to Represent the Patient Voice in the Electronic Health Record? Line Silsand, Gro Hilde Severinsen, Gro R. Berntsen, Aslak Irgens Steinsbekk ...flere forfattere Studies in health technology and informatics 2023
Psychological safety in European medical students’ last supervised patient encounter: A cross-sectional survey Cathinka Thyness, Hilde Grimstad, Aslak Irgens Steinsbekk ...flere forfattere PLoS ONE 2023
Work as an arena for health-Supervisors' experiences with attending to employees' sick leave and return-to-work process Nina Elisabeth Klevanger, Lene Aasdahl, Marit By Rise ...flere forfattere PLoS ONE 2023
Can academic detailing reduce opioid prescriptions in chronic non-cancer pain? Ketil Arne Espnes, Torunn Hatlen Nøst, Marte Handal, Svetlana O. Skurtveit, Harald Christian Langaas ...flere forfattere BMC Primary Care 2023
How Did People with Prediabetes Who Attended the Diabetes Prevention Education Program (DiPEP) Experience Making Lifestyle Changes? A Qualitative Study in Nepal Pushpanjali Shakya, Monish Bajracharya, Eva Skovlund, Abha Shrestha, Biraj Karmarcharya, Bård Eirik Kulseng, Abhijit Sen, Aslak Irgens Steinsbekk, Archana Shrestha ...flere forfattere International Journal of Environmental Research and Public Health 2023
Publikasjonsdata lastet ned ukentlig fra Scopus-API via  api.elsevier.com og www.scopus.com.
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