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  1. Employees

Språkvelger

Norsk

Sandra Julsen Hollung

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Sandra Julsen Hollung

Guest Researcher
Department of Clinical and Molecular Medicine

sandra.j.hollung@ntnu.no
ResearchGate Google Scholar Norwegian Quality and Surveillance Registry for Cerebral Palsy (NorCP)
About Research Publications Teaching Outreach

About

Health Data Scientist/Researcher
Norwegian Quality and Surveillance Registry for Cerebral Palsy (NorCP)
Vestfold Hospital Trust

Competencies

  • Cerebral Palsy
  • Health registers
  • Public health

Research

  • Cerebral Palsy Research Group

Risk factors for cerebral palsy

Main aim to research risk factors for cerebral palsy to prevent early brain injuries in children. In addition, to study association between clinical characteristics and prenatal, neonatal and postneonatal risk factors.

CP-North

Our aim is to explore how living with CP affects health, quality of life, education, labor market outcomes, socioeconomic status, and mortality throughout the lifespan of the individual with CP and his/her family in the Nordic countries.

CPPain programmet

Et forskningsprogram som har som mål å redusere smerter hos barn og ungdom som lever med CP.

Surveillance of Cerebral Palsy in Europe (SCPE)

The SCPE was established in 1998 as a collaboration of professionals and researchers working with cerebral palsy registries in Europe, to disseminate knowledge through epidemiological data, monitor trends and inform service planning.

Publications

  • Chronological
  • By category
  • See all publications in Cristin

2025

  • Sigholt, Maria Wiedswang; Andersen, Guro Lillemoen; Lydersen, Stian; Thomsen, Liv Cecilie Vestrheim; Vik, Torstein; Hollung, Sandra Julsen. (2025) Cerebral palsy and perinatal mortality in children born in Norway to immigrant mothers. Developmental Medicine & Child Neurology
    Academic article
  • Larsen, Selma Mujezinovic; Ramstad, Kjersti; Hollung, Sandra Julsen; Andersen, Guro Lillemoen; Diseth, Trond Haaken. (2025) Higher Self-Than Parent-Reported Health-Related Quality of Life in Adolescents With Cerebral Palsy; a Register Study. Acta Paediatrica
    Academic article

2024

  • Stadskleiv, Kristine; Lorentzen, Lena Elin; Hollung, Sandra Julsen. (2024) Cognitive functioning in children with cerebral palsy: Results from a national cohort study. Developmental Medicine & Child Neurology
    Abstract
  • Papavasiliou, Antigone; Hollung, Sandra Julsen; Virella, Daniel; Delobel-Ayoub, Malika; Hollody, Katalin; Neubauer, David. (2024) Perspectives of cerebral palsy experts on access to health care in Europe. European journal of paediatric neurology
    Academic article
  • Johansen, Stine; Andersen, Guro Lillemoen; Lydersen, Stian; Kalleson, Runa; Hollung, Sandra Julsen. (2024) Use of primary health care services among children and adolescents with cerebral palsy. Developmental Medicine & Child Neurology
    Academic article

2023

  • Lydersen, Stian; Vik, Torstein; Hollung, Sandra Julsen. (2023) The increased risk of cerebral palsy associated with assisted reproductive technology is mainly attributable to multiple pregnancies. Acta Obstetricia et Gynecologica Scandinavica
    Letter to the editor
  • Hollung, Sandra Julsen; Given, Joanne. (2023) Insights from the epidemiology of cerebral palsy: Navigating the advantages and limitations of registry versus administrative health data. Paediatric and Perinatal Epidemiology
    Short communication
  • Hollung, Sandra Julsen; Jahnsen, Reidun Birgitta; Klevberg, Gunvor Lilleholt; Kløve, Nina; Andersen, Guro Lillemoen. (2023) The impact of longitudinal surveillance of individuals with cerebral palsy in Norway; a 20-year quality registry and follow-up program perspective. Norsk Epidemiologi
    Academic literature review
  • Papavasiliou, Antigone; Kinsner‐Ovaskainen, Agnieszka; Hollung, Sandra Julsen; Virella, Daniel; Hollody, Katalin; Neubauer, David. (2023) SCPE survey: Where Europe stands in the care of cerebral palsy (CP): Needs and inequalities. Developmental Medicine & Child Neurology
    Abstract
  • Mynarek, Maren; Vik, Torstein; Andersen, Guro L.; Brigtsen, Anne K.; Hollung, Sandra Julsen; Larose, Tricia L.. (2023) Mortality and neurodevelopmental outcome after invasive group B streptococcal infection in infants. Developmental Medicine & Child Neurology
    Academic article
  • Stockman, Jessica; Eggertsdottir, Guðbjörg; Gaston, Mark; Jeglinsky-Kankainen, Ira F. D.; Hollung, Sandra Julsen; Nordbye-Nielsen, Kirsten. (2023) Ankle-foot orthoses among children with cerebral palsy: a cross-sectional population-based register study of 8,928 children living in Northern Europe. BMC Musculoskeletal Disorders
    Academic article
  • Evensen, Thomas L.; Vik, Torstein; Andersen, Guro Lillemoen; Bjellmo, Solveig; Hollung, Sandra Julsen. (2023) Prevalence, birth, and clinical characteristics of dyskinetic cerebral palsy compared with spastic cerebral palsy subtypes: A Norwegian register‐based study. Developmental Medicine & Child Neurology
    Academic article
  • Johansen, Stine; Andersen, Guro Lillemoen; Lydersen, Stian; Kalleson, Runa; Hollung, Sandra Julsen. (2023) Use Of Primary Healthcare Services Among Children and Youths with Cerebral Palsy in Norway, A Registry-Based Study. Developmental Medicine & Child Neurology
    Abstract
  • Carlsen, Henriette; Vik, Torstein; Andersen, Guro Lillemoen; Stangenes, Kristine Marie; Bjellmo, Solveig; Westvik-Johari, Kjersti. (2023) Cerebral palsy in children born after assisted reproductive technology in Norway: Risk, prevalence, and clinical characteristics. Acta Obstetricia et Gynecologica Scandinavica
    Academic article
  • Friede, Pamela; Hollung, Sandra Julsen; Vik, Torstein; Andersen, Guro Lillemoen; Cameron, David Lansing; de Rodez Benavent, Sigrid Aune. (2023) Norwegian paediatric habilitation centres judge their own competence on cerebral visual impairment as limited. Acta Paediatrica
    Academic article
  • Garne, Ester; Goldsmith, Shona; Barisic, Ingeborg; Braz, Paula; Dakovic, Ivana; Gibson, Catherine. (2023) Severe Congenital Heart Defects and Cerebral Palsy. Journal of Pediatrics
    Academic article

2022

  • McIntyre, Sarah; Goldsmith, Shona; Webb, Annabel; Ehlinger, Virginie; Hollung, Sandra Julsen; McConnell, Karen. (2022) Global prevalence of cerebral palsy: A systematic analysis. Developmental Medicine & Child Neurology
    Academic article
  • Knudsen, Maja Jasmin; Stadskleiv, Kristine; O'Regan, Elisabeth; Alriksson-Schmidt, Ann I.; Andersen, Guro Lillemoen; Hollung, Sandra Julsen. (2022) The implementation of systematic monitoring of cognition in children with cerebral palsy in Sweden and Norway. Disability and Rehabilitation
    Academic article
  • Schiariti, Verónica; Hollung, Sandra Julsen. (2022) The rights of children with disabilities during armed conflict. Developmental Medicine & Child Neurology
    Letter to the editor

2021

  • Hägglund, Gunnar; Hollung, Sandra Julsen; Ahonen, Matti; Andersen, Guro Lillemoen; Eggertsdottir, Guðbjörg; Gaston, Mark. (2021) Treatment of spasticity in children and adolescents with cerebral palsy in Northern Europe: a CP-North registry study. BMC Neurology
    Academic article
  • Alriksson-Schmidt, Ann I.; Hägglund, Gunnar; Hollung, Sandra Julsen; Ahonen, Matti; Andersen, Guro Lillemoen; Eggertsdottir, Guðbjörg. (2021) Treatment of spasticity in children and adolescents with cerebral palsy in northern Europe: a CP-north registry study. Developmental Medicine & Child Neurology
    Abstract
  • Tharaldsen, Guro; Vik, Torstein; Andersen, Guro Lillemoen; Hollung, Sandra Julsen. (2021) Risk factors and clinical characteristics of children with postneonatal cerebral palsy in Norway. Developmental Medicine & Child Neurology
    Abstract
  • Tharaldsen, Guro; Hollung, Sandra Julsen; Vik, Torstein; Andersen, Guro Lillemoen. (2021) High occurrence of perinatal risk factors and more severe impairments in children with postneonatal cerebral palsy in Norway. Acta Paediatrica
    Academic article
  • Stadskleiv, Kristine; van Walsem, Marleen R.; Andersen, Guro Lillemoen; Bergqvist, Lena; Bøttcher, Louise; Christensen, Klaus. (2021) Systematic Monitoring of Cognition for Adults With Cerebral Palsy—The Rationale Behind the Development of the CPCog-Adult Follow-Up Protocol. Frontiers in Neurology
    Academic article
  • Hollung, Sandra Julsen; Vik, Torstein; Andersen, Guro Lillemoen. (2021) The Challenge of Identifying Causal Pathways Leading to Cerebral Palsy. Pediatrics
    Academic literature review
  • Hollung, Sandra Julsen; Hägglund, Gunnar; Gaston, Mark; Seid, Abdu Kedir; Lydersen, Stian; Alriksson-Schmidt, Ann I.. (2021) Point prevalence and motor function of children and adolescents with cerebral palsy in Scandinavia and Scotland: a CP‐North study. Developmental Medicine & Child Neurology
    Academic article

2020

  • Hollung, Sandra Julsen. (2020) Overvåkning av cerebral parese i Norge. CP bladet
    Popular scientific article
  • Stadskleiv, Kristine; Andersen, Guro Lillemoen; Hollung, Sandra Julsen. (2020) Økt andel barn med cerebral parese som tilbys kognitiv utredning. Sluttrapport fra kvalitetsforbedringsprosjekt med bruk av data fra nasjonale medisinske kvalitetsregistre. Sykehuset i Vestfold
    Report
  • Stadskleiv, Kristine; Andersen, Guro Lillemoen; Hollung, Sandra Julsen. (2020) Felles løft for å avhjelpe kognitive vansker hos barn og voksne med CP. CP bladet
    Popular scientific article
  • Hollung, Sandra Julsen; Vik, Torstein; Andersen, Guro Lillemoen. (2020) Prevalence and severity of children with cerebral palsy born in Norway to immigrant mothers. Developmental Medicine & Child Neurology
    Abstract
  • Hollung, Sandra Julsen; Hägglund, Gunnar; Gaston, Mark; Møller‐Madsen, Bjarne; Alriksson‐Schmidt, Ann; Andersen, Guro Lillemoen. (2020) Prevalence and severity of individuals with cerebral palsy in Scandinavia and Scotland, a CP‐North study. Developmental Medicine & Child Neurology
    Abstract

2019

  • Ross Raftemo, Anne Elisabeth; Mahendran, Arani; Hollung, Sandra Julsen; Jahnsen, Reidun; Lydersen, Stian; Vik, Torstein. (2019) Bruk av botulinumtoksin A til barn med cerebral parese. Tidsskrift for Den norske legeforening (Tidsskriftet)
    Academic article
  • Alriksson-Schmidt, Ann I.; Jeglinsky-Kankainen, Ira F. D.; Jahnsen, Reidun; Hollung, Sandra Julsen; Andersen, Guro Lillemoen; Hägglund, Gunnar. (2019) Flaunting our assets. Making the most of the Nordic registry goldmine: Cerebral palsy as an example. Scandinavian Journal of Public Health
    Academic article
  • Hollung, Sandra Julsen; Bakken, Inger Johanne Landsjøåsen; Vik, Torstein; Lydersen, Stian; Wiik, Robert; Aaberg, Kari Modalsli. (2019) Comorbidities in cerebral palsy: a patient registry study. Developmental Medicine & Child Neurology
    Academic article
  • Hollung, Sandra Julsen; Lanzoni, Monica; Delobel, Malika; Ehlinger, Virginie; Kinsner‐Ovaskainen, Agnieszka; Himmelmann, Kate. (2019) How can data from the surveillance of cerebral palsy in Europe be useful for supporting health policies?. Developmental Medicine & Child Neurology
    Abstract
  • Hollung, Sandra Julsen. (2019) Surveillance of cerebral palsy in Norway; a national registry-based study. Doktoravhandlinger ved NTNU (285)
    Doctoral dissertation
  • Hollung, Sandra Julsen; Bakken, Inger Johanne Landsjøåsen; Vik, Torstein; Wiik, Robert; Lydersen, Stian; Andersen, Guro Lillemoen. (2019) Cerebral palsy and comorbidities, a National Registry Study in Norway. Developmental Medicine & Child Neurology
    Abstract

2018

  • Hollung, Sandra Julsen; Andersen, Guro Lillemoen. (2018) Nedgang i forekomst og alvorlighetsgrad av cerebral parese i Norge. CP bladet
    Popular scientific article
  • Hollung, Sandra Julsen; Vik, Torstein; Lydersen, Stian; Bakken, Inger Johanne; Andersen, Guro Lillemoen. (2018) Decreasing prevalence and severity of cerebral palsy in Norway among children born 1999 to 2010 concomitant with improvements in perinatal health. European journal of paediatric neurology
    Academic article

2017

  • Hollung, Sandra Julsen; Vik, Torstein; Andersen, Guro Lillemoen. (2017) Comparison of young adults with cerebral palsy in Norway with and without epilepsy. Developmental Medicine & Child Neurology
    Abstract
  • Hollung, Sandra Julsen; Vik, Torstein; Wiik, Robert; Bakken, Inger Johanne; Andersen, Guro Lillemoen. (2017) Completeness and correctness of cerebral palsy diagnoses in two health registers: implications for estimating prevalence. Developmental Medicine & Child Neurology
    Academic article
  • Hollung, Sandra Julsen; Vik, Torstein; Andersen, Guro Lillemoen. (2017) Time trends of children with cerebral palsy in Norway; a national register-based study. Developmental Medicine & Child Neurology
    Abstract

2016

  • Pennington, Lindsay; Andersen, Guro Lillemoen; Kirby, Jennifer; Hollung, Sandra Julsen; Vik, Torstein. (2016) Prediction of speech intelligibility of children with cerebral palsy (CP) from characteristics at 2 years of age. Developmental Medicine & Child Neurology
    Abstract
  • Hollung, Sandra Julsen; Andersen, Guro Lillemoen; Wiik, Robert; Bakken, Inger Johanne; Vik, Torstein. (2016) What is the ”true” prevalence of cerebral palsy in Norway?. Developmental Medicine & Child Neurology
    Abstract
  • Hollung, Sandra Julsen; Vik, Torstein; Andersen, Guro Lillemoen. (2016) Time trends in clinical characteristics and diagnostic measures of children with CP in Norway. Developmental Medicine & Child Neurology
    Abstract
  • Raftemo, Anne Elisabeth Ross; Mahendran, Arani; Elkamil, Areej Ibrahim; Hollung, Sandra Julsen; Vik, Torstein; Andersen, Guro Lillemoen. (2016) The need for better evidence for the use of Botulinum toxin A (BoNT-A) in the treatment of children with CP: Lessons from Norway. Developmental Medicine & Child Neurology
    Abstract

2015

  • Hollung, Sandra Julsen; Andersen, Guro Lillemoen; Wiik, Robert; Bakken, Inger Johanne; Vik, Torstein. (2015) What is the prevalence of cerebral palsy in Norway?. Developmental Medicine & Child Neurology
    Abstract
  • Hollung, Sandra Julsen. (2015) The Secondary Use of Electronic Health Records (EHR) to Improve Data Quality in Scandinavian National Medical Quality Registries. Northeastern University
    Masters thesis

2014

  • Wiik, Robert; Andersen, Guro Lillemoen; Hollung, Sandra Julsen; Vik, Torstein. (2014) Dokumentkontroll av pasientjournaler med ICD-10-kode for cerebral parese. Validering av resultater fra dekningsgradsanalyse for Cerebral pareseregisteret i Norge og Norsk pasientregister. Helsedirektoratet
    Report
  • Andersen, Guro Lillemoen; Hollung, Sandra Julsen; Vik, Torstein. (2014) Cerebral MRI Findings In Children With Cerebral Palsy (CP) In Norway. Archives of Disease in Childhood
    Abstract

2012

  • Hollung, Sandra Julsen; Andersen, Guro Lillemoen; Vik, Torstein. (2012) How is growth and nutritional status assessed in children with cerebral palsy? A cross-sectional survey in 17 European countries. Developmental Medicine & Child Neurology
    Abstract

Journal publications

  • Sigholt, Maria Wiedswang; Andersen, Guro Lillemoen; Lydersen, Stian; Thomsen, Liv Cecilie Vestrheim; Vik, Torstein; Hollung, Sandra Julsen. (2025) Cerebral palsy and perinatal mortality in children born in Norway to immigrant mothers. Developmental Medicine & Child Neurology
    Academic article
  • Larsen, Selma Mujezinovic; Ramstad, Kjersti; Hollung, Sandra Julsen; Andersen, Guro Lillemoen; Diseth, Trond Haaken. (2025) Higher Self-Than Parent-Reported Health-Related Quality of Life in Adolescents With Cerebral Palsy; a Register Study. Acta Paediatrica
    Academic article
  • Stadskleiv, Kristine; Lorentzen, Lena Elin; Hollung, Sandra Julsen. (2024) Cognitive functioning in children with cerebral palsy: Results from a national cohort study. Developmental Medicine & Child Neurology
    Abstract
  • Papavasiliou, Antigone; Hollung, Sandra Julsen; Virella, Daniel; Delobel-Ayoub, Malika; Hollody, Katalin; Neubauer, David. (2024) Perspectives of cerebral palsy experts on access to health care in Europe. European journal of paediatric neurology
    Academic article
  • Johansen, Stine; Andersen, Guro Lillemoen; Lydersen, Stian; Kalleson, Runa; Hollung, Sandra Julsen. (2024) Use of primary health care services among children and adolescents with cerebral palsy. Developmental Medicine & Child Neurology
    Academic article
  • Lydersen, Stian; Vik, Torstein; Hollung, Sandra Julsen. (2023) The increased risk of cerebral palsy associated with assisted reproductive technology is mainly attributable to multiple pregnancies. Acta Obstetricia et Gynecologica Scandinavica
    Letter to the editor
  • Hollung, Sandra Julsen; Given, Joanne. (2023) Insights from the epidemiology of cerebral palsy: Navigating the advantages and limitations of registry versus administrative health data. Paediatric and Perinatal Epidemiology
    Short communication
  • Hollung, Sandra Julsen; Jahnsen, Reidun Birgitta; Klevberg, Gunvor Lilleholt; Kløve, Nina; Andersen, Guro Lillemoen. (2023) The impact of longitudinal surveillance of individuals with cerebral palsy in Norway; a 20-year quality registry and follow-up program perspective. Norsk Epidemiologi
    Academic literature review
  • Papavasiliou, Antigone; Kinsner‐Ovaskainen, Agnieszka; Hollung, Sandra Julsen; Virella, Daniel; Hollody, Katalin; Neubauer, David. (2023) SCPE survey: Where Europe stands in the care of cerebral palsy (CP): Needs and inequalities. Developmental Medicine & Child Neurology
    Abstract
  • Mynarek, Maren; Vik, Torstein; Andersen, Guro L.; Brigtsen, Anne K.; Hollung, Sandra Julsen; Larose, Tricia L.. (2023) Mortality and neurodevelopmental outcome after invasive group B streptococcal infection in infants. Developmental Medicine & Child Neurology
    Academic article
  • Stockman, Jessica; Eggertsdottir, Guðbjörg; Gaston, Mark; Jeglinsky-Kankainen, Ira F. D.; Hollung, Sandra Julsen; Nordbye-Nielsen, Kirsten. (2023) Ankle-foot orthoses among children with cerebral palsy: a cross-sectional population-based register study of 8,928 children living in Northern Europe. BMC Musculoskeletal Disorders
    Academic article
  • Evensen, Thomas L.; Vik, Torstein; Andersen, Guro Lillemoen; Bjellmo, Solveig; Hollung, Sandra Julsen. (2023) Prevalence, birth, and clinical characteristics of dyskinetic cerebral palsy compared with spastic cerebral palsy subtypes: A Norwegian register‐based study. Developmental Medicine & Child Neurology
    Academic article
  • Johansen, Stine; Andersen, Guro Lillemoen; Lydersen, Stian; Kalleson, Runa; Hollung, Sandra Julsen. (2023) Use Of Primary Healthcare Services Among Children and Youths with Cerebral Palsy in Norway, A Registry-Based Study. Developmental Medicine & Child Neurology
    Abstract
  • Carlsen, Henriette; Vik, Torstein; Andersen, Guro Lillemoen; Stangenes, Kristine Marie; Bjellmo, Solveig; Westvik-Johari, Kjersti. (2023) Cerebral palsy in children born after assisted reproductive technology in Norway: Risk, prevalence, and clinical characteristics. Acta Obstetricia et Gynecologica Scandinavica
    Academic article
  • Friede, Pamela; Hollung, Sandra Julsen; Vik, Torstein; Andersen, Guro Lillemoen; Cameron, David Lansing; de Rodez Benavent, Sigrid Aune. (2023) Norwegian paediatric habilitation centres judge their own competence on cerebral visual impairment as limited. Acta Paediatrica
    Academic article
  • Garne, Ester; Goldsmith, Shona; Barisic, Ingeborg; Braz, Paula; Dakovic, Ivana; Gibson, Catherine. (2023) Severe Congenital Heart Defects and Cerebral Palsy. Journal of Pediatrics
    Academic article
  • McIntyre, Sarah; Goldsmith, Shona; Webb, Annabel; Ehlinger, Virginie; Hollung, Sandra Julsen; McConnell, Karen. (2022) Global prevalence of cerebral palsy: A systematic analysis. Developmental Medicine & Child Neurology
    Academic article
  • Knudsen, Maja Jasmin; Stadskleiv, Kristine; O'Regan, Elisabeth; Alriksson-Schmidt, Ann I.; Andersen, Guro Lillemoen; Hollung, Sandra Julsen. (2022) The implementation of systematic monitoring of cognition in children with cerebral palsy in Sweden and Norway. Disability and Rehabilitation
    Academic article
  • Schiariti, Verónica; Hollung, Sandra Julsen. (2022) The rights of children with disabilities during armed conflict. Developmental Medicine & Child Neurology
    Letter to the editor
  • Hägglund, Gunnar; Hollung, Sandra Julsen; Ahonen, Matti; Andersen, Guro Lillemoen; Eggertsdottir, Guðbjörg; Gaston, Mark. (2021) Treatment of spasticity in children and adolescents with cerebral palsy in Northern Europe: a CP-North registry study. BMC Neurology
    Academic article
  • Alriksson-Schmidt, Ann I.; Hägglund, Gunnar; Hollung, Sandra Julsen; Ahonen, Matti; Andersen, Guro Lillemoen; Eggertsdottir, Guðbjörg. (2021) Treatment of spasticity in children and adolescents with cerebral palsy in northern Europe: a CP-north registry study. Developmental Medicine & Child Neurology
    Abstract
  • Tharaldsen, Guro; Vik, Torstein; Andersen, Guro Lillemoen; Hollung, Sandra Julsen. (2021) Risk factors and clinical characteristics of children with postneonatal cerebral palsy in Norway. Developmental Medicine & Child Neurology
    Abstract
  • Tharaldsen, Guro; Hollung, Sandra Julsen; Vik, Torstein; Andersen, Guro Lillemoen. (2021) High occurrence of perinatal risk factors and more severe impairments in children with postneonatal cerebral palsy in Norway. Acta Paediatrica
    Academic article
  • Stadskleiv, Kristine; van Walsem, Marleen R.; Andersen, Guro Lillemoen; Bergqvist, Lena; Bøttcher, Louise; Christensen, Klaus. (2021) Systematic Monitoring of Cognition for Adults With Cerebral Palsy—The Rationale Behind the Development of the CPCog-Adult Follow-Up Protocol. Frontiers in Neurology
    Academic article
  • Hollung, Sandra Julsen; Vik, Torstein; Andersen, Guro Lillemoen. (2021) The Challenge of Identifying Causal Pathways Leading to Cerebral Palsy. Pediatrics
    Academic literature review
  • Hollung, Sandra Julsen; Hägglund, Gunnar; Gaston, Mark; Seid, Abdu Kedir; Lydersen, Stian; Alriksson-Schmidt, Ann I.. (2021) Point prevalence and motor function of children and adolescents with cerebral palsy in Scandinavia and Scotland: a CP‐North study. Developmental Medicine & Child Neurology
    Academic article
  • Hollung, Sandra Julsen. (2020) Overvåkning av cerebral parese i Norge. CP bladet
    Popular scientific article
  • Stadskleiv, Kristine; Andersen, Guro Lillemoen; Hollung, Sandra Julsen. (2020) Felles løft for å avhjelpe kognitive vansker hos barn og voksne med CP. CP bladet
    Popular scientific article
  • Hollung, Sandra Julsen; Vik, Torstein; Andersen, Guro Lillemoen. (2020) Prevalence and severity of children with cerebral palsy born in Norway to immigrant mothers. Developmental Medicine & Child Neurology
    Abstract
  • Hollung, Sandra Julsen; Hägglund, Gunnar; Gaston, Mark; Møller‐Madsen, Bjarne; Alriksson‐Schmidt, Ann; Andersen, Guro Lillemoen. (2020) Prevalence and severity of individuals with cerebral palsy in Scandinavia and Scotland, a CP‐North study. Developmental Medicine & Child Neurology
    Abstract
  • Ross Raftemo, Anne Elisabeth; Mahendran, Arani; Hollung, Sandra Julsen; Jahnsen, Reidun; Lydersen, Stian; Vik, Torstein. (2019) Bruk av botulinumtoksin A til barn med cerebral parese. Tidsskrift for Den norske legeforening (Tidsskriftet)
    Academic article
  • Alriksson-Schmidt, Ann I.; Jeglinsky-Kankainen, Ira F. D.; Jahnsen, Reidun; Hollung, Sandra Julsen; Andersen, Guro Lillemoen; Hägglund, Gunnar. (2019) Flaunting our assets. Making the most of the Nordic registry goldmine: Cerebral palsy as an example. Scandinavian Journal of Public Health
    Academic article
  • Hollung, Sandra Julsen; Bakken, Inger Johanne Landsjøåsen; Vik, Torstein; Lydersen, Stian; Wiik, Robert; Aaberg, Kari Modalsli. (2019) Comorbidities in cerebral palsy: a patient registry study. Developmental Medicine & Child Neurology
    Academic article
  • Hollung, Sandra Julsen; Lanzoni, Monica; Delobel, Malika; Ehlinger, Virginie; Kinsner‐Ovaskainen, Agnieszka; Himmelmann, Kate. (2019) How can data from the surveillance of cerebral palsy in Europe be useful for supporting health policies?. Developmental Medicine & Child Neurology
    Abstract
  • Hollung, Sandra Julsen; Bakken, Inger Johanne Landsjøåsen; Vik, Torstein; Wiik, Robert; Lydersen, Stian; Andersen, Guro Lillemoen. (2019) Cerebral palsy and comorbidities, a National Registry Study in Norway. Developmental Medicine & Child Neurology
    Abstract
  • Hollung, Sandra Julsen; Andersen, Guro Lillemoen. (2018) Nedgang i forekomst og alvorlighetsgrad av cerebral parese i Norge. CP bladet
    Popular scientific article
  • Hollung, Sandra Julsen; Vik, Torstein; Lydersen, Stian; Bakken, Inger Johanne; Andersen, Guro Lillemoen. (2018) Decreasing prevalence and severity of cerebral palsy in Norway among children born 1999 to 2010 concomitant with improvements in perinatal health. European journal of paediatric neurology
    Academic article
  • Hollung, Sandra Julsen; Vik, Torstein; Andersen, Guro Lillemoen. (2017) Comparison of young adults with cerebral palsy in Norway with and without epilepsy. Developmental Medicine & Child Neurology
    Abstract
  • Hollung, Sandra Julsen; Vik, Torstein; Wiik, Robert; Bakken, Inger Johanne; Andersen, Guro Lillemoen. (2017) Completeness and correctness of cerebral palsy diagnoses in two health registers: implications for estimating prevalence. Developmental Medicine & Child Neurology
    Academic article
  • Hollung, Sandra Julsen; Vik, Torstein; Andersen, Guro Lillemoen. (2017) Time trends of children with cerebral palsy in Norway; a national register-based study. Developmental Medicine & Child Neurology
    Abstract
  • Pennington, Lindsay; Andersen, Guro Lillemoen; Kirby, Jennifer; Hollung, Sandra Julsen; Vik, Torstein. (2016) Prediction of speech intelligibility of children with cerebral palsy (CP) from characteristics at 2 years of age. Developmental Medicine & Child Neurology
    Abstract
  • Hollung, Sandra Julsen; Andersen, Guro Lillemoen; Wiik, Robert; Bakken, Inger Johanne; Vik, Torstein. (2016) What is the ”true” prevalence of cerebral palsy in Norway?. Developmental Medicine & Child Neurology
    Abstract
  • Hollung, Sandra Julsen; Vik, Torstein; Andersen, Guro Lillemoen. (2016) Time trends in clinical characteristics and diagnostic measures of children with CP in Norway. Developmental Medicine & Child Neurology
    Abstract
  • Raftemo, Anne Elisabeth Ross; Mahendran, Arani; Elkamil, Areej Ibrahim; Hollung, Sandra Julsen; Vik, Torstein; Andersen, Guro Lillemoen. (2016) The need for better evidence for the use of Botulinum toxin A (BoNT-A) in the treatment of children with CP: Lessons from Norway. Developmental Medicine & Child Neurology
    Abstract
  • Hollung, Sandra Julsen; Andersen, Guro Lillemoen; Wiik, Robert; Bakken, Inger Johanne; Vik, Torstein. (2015) What is the prevalence of cerebral palsy in Norway?. Developmental Medicine & Child Neurology
    Abstract
  • Andersen, Guro Lillemoen; Hollung, Sandra Julsen; Vik, Torstein. (2014) Cerebral MRI Findings In Children With Cerebral Palsy (CP) In Norway. Archives of Disease in Childhood
    Abstract
  • Hollung, Sandra Julsen; Andersen, Guro Lillemoen; Vik, Torstein. (2012) How is growth and nutritional status assessed in children with cerebral palsy? A cross-sectional survey in 17 European countries. Developmental Medicine & Child Neurology
    Abstract

Report

  • Stadskleiv, Kristine; Andersen, Guro Lillemoen; Hollung, Sandra Julsen. (2020) Økt andel barn med cerebral parese som tilbys kognitiv utredning. Sluttrapport fra kvalitetsforbedringsprosjekt med bruk av data fra nasjonale medisinske kvalitetsregistre. Sykehuset i Vestfold
    Report
  • Hollung, Sandra Julsen. (2019) Surveillance of cerebral palsy in Norway; a national registry-based study. Doktoravhandlinger ved NTNU (285)
    Doctoral dissertation
  • Hollung, Sandra Julsen. (2015) The Secondary Use of Electronic Health Records (EHR) to Improve Data Quality in Scandinavian National Medical Quality Registries. Northeastern University
    Masters thesis
  • Wiik, Robert; Andersen, Guro Lillemoen; Hollung, Sandra Julsen; Vik, Torstein. (2014) Dokumentkontroll av pasientjournaler med ICD-10-kode for cerebral parese. Validering av resultater fra dekningsgradsanalyse for Cerebral pareseregisteret i Norge og Norsk pasientregister. Helsedirektoratet
    Report

Teaching

Supervision

Main supervisor for medical students (thesis) using data from the Norwegian Quality and Surveillance Registry for Cerebral Palsy (NorCP), as well as the Medical Birth Registry of Norway, Norwegian Patient Registry, Statistics Norway, Norway Control and Payment of Health Reimbursement database and Cause of Death Registry.

Outreach

Reportasjen om CP i NRK Dagsrevyen

Reportasjen om nedgang i forekomst og alvorlighetsgrad av CP i Norge, i NRK Dagsrevyen; starter 16:10.

Nedgang i cerebral parese i Norge

Både forekomst og alvorlighetsgrad av cerebral parese (CP) har gått betydelig ned de siste 20 årene. Årsaken er antagelig fremskritt innen svangerskapsomsorg, fødselshjelp og i behandling av syke nyfødte.

2025

  • Poster
    Reynolds, Robert J; Day, Steven; Hollung, Sandra Julsen; Himmelmann, Kate; Rackauskaite, Gija; Dan, Bernard. (2025) A Causal Diagram for Cerebral Palsy: A New International Collaboration. Society for Pediatric and Perinatal Epidemiologic Research (SPER) 38th Annual Meeting of the Society for Pediatric and Perinatal Epidemiologic Research (SPER) , Boston, MA, USA 2025-06-09 - 2025-06-10

2024

  • Lecture
    Arnaud, Catherine; Hollung, Sandra Julsen. (2024) Population-based cerebral palsy registries. EACD 36th Annual Meeting of the European Academy of Childhood Disability (EACD) , Bruges, Belgium 2024-05-29 - 2024-06-01
  • Poster
    Wiedswang Sigholt, Maria; Andersen, Guro Lillemoen; Hollung, Sandra Julsen. (2024) Cerebral Palsy in Children Born in Norway to Immigrant Mothers. EACD 36th Annual Meeting of the European Academy of Childhood Disability (EACD) , Bruges, Belgium 2024-05-29 - 2024-06-01
  • Lecture
    Kløve, Nina; Klevberg, Gunvor Lilleholt; Jahnsen, Reidun; Utne Sandberg, Cathrine; Rodby Bousquet, Elisabet; Stadskleiv, Kristine. (2024) Development of evidence-based clinical guidelines for individuals with cerebral palsy through the lifespan. EACD 36th Annual Meeting of the European Academy of Childhood Disability (EACD) , Bruges, Belgium 2024-05-29 - 2024-06-01
  • Academic lecture
    McIntyre, Sarah; Day, Steven; Reynolds, Robert J; Badawi, Nadia; Goldsmith, Shona; Himmelmann, Kate. (2024) Developing a causal diagram for cerebral palsy: A new worldwide multidisciplinary collaboration. Australasian Brain Club Australasian Brain Club 2024 Cerebrovascular Injury and Neuroprotection , Melbourne, Australia 2024-11-14 - 2024-11-15
  • Academic lecture
    Hollung, Sandra Julsen. (2024) The Impact of a Combined Medical Quality Registry and Surveillance Program for Cerebral Palsy: Insights and Experiences. Royal College of Surgeons in Ireland, CP-Life Research Center The Past, Present and Future of Cerebral Palsy Registers in Ireland: A stakeholder event to learn from national and international experiences , Dublin, Ireland 2024-12-02 - 2024-12-02

2023

  • Academic lecture
    Rosenberg, Nathan; Papavasiliou, Antigone; Hollung, Sandra Julsen; Lichtenthal, Peter. (2023) MINISYMP26: Making large international care strides through scholarships and education -- the impact of AACPDM scholarships and global activities of the international affairs committee. AACPDM American Academy for Cerebral Palsy and Developmental Medicine 77th Annual Meeting , Chicago, USA 2023-09-10 - 2023-09-13
  • Academic lecture
    Johansen, Stine; Andersen, Guro Lillemoen; Lydersen, Stian; Kalleson, Runa; Hollung, Sandra Julsen. (2023) Use Of Primary Healthcare Services Among Children and Youths with Cerebral Palsy in Norway, A Registry-Based Study. AACPDM American Academy for Cerebral Palsy and Developmental Medicine 77th Annual Meeting , Chicago, USA 2023-09-10 - 2023-09-13

2022

  • Academic lecture
    Ross Raftemo, Anne Elisabeth; Jahnsen, Reidun Birgitta; Brandvik, Siri; Hollung, Sandra Julsen; Zucknick, Manuela; Andersen, Guro Lillemoen. (2022) Spasticity treatments and orthopedic surgeries in lower extremities in children with cerebral palsy – a longitudinal population based study. AusACPDM Combined 11th Australasian Academy of Cerebral Palsy and Developmental Medicine and the 3rd International Alliance of Academies of Childhood Disability 'Better Together' Conference 2022 , Melbourne, Australia 2022-03-01 - 2022-03-05
  • Interview
    Andersen, Guro Lillemoen; Hollung, Sandra Julsen. (2022) NorCP – et av de største registrene i Europa av sitt slag. Hjernerådets nyhetsbrev Hjernerådets nyhetsbrev [Business/trade/industry journal] 2022-10-03
  • Lecture
    Hollung, Sandra Julsen. (2022) Etiologies/risk factors and prevalence of cerebral palsy in high resource countries. The International Child Neurology Association 17th International Child Neurology Congress , Antalya 2022-10-03 - 2022-10-07
  • Academic lecture
    Evensen, Thomas; Andersen, Guro Lillemoen; Vik, Torstein; Hollung, Sandra Julsen. (2022) Dyskinetic cerebral palsy in Norway: risk factors and clinical characteristics. AusACPDM Combined 11th Australasian Academy of Cerebral Palsy and Developmental Medicine and the 3rd International Alliance of Academies of Childhood Disability 'Better Together' Conference 2022 , Melbourne, Australia 2022-03-01 - 2022-03-05
  • Poster
    McIntyre, Sarah; Goldsmith, Shona; Himmelmann, Kate; Arnaud, Catherine; Webb, Annabel; Ehlingher, Virginie. (2022) Global prevalence of cerebral palsy: A systematic analysis. EACD 34th Annual Meeting European Academy of Childhood Disability - EACD 2022 , Barcelona 2022-05-18 - 2022-05-21

2021

  • Academic lecture
    Tharaldsen, Guro; Vik, Torstein; Andersen, Guro Lillemoen; Hollung, Sandra Julsen. (2021) Risk factors and clinical characteristics of children with postneonatal cerebral palsy in Norway. EACD European Academy of Childhood Disability (EACD) 2021 , Online 2021-05-20 - 2021-06-10
  • Academic lecture
    Hollung, Sandra Julsen; Andersen, Guro Lillemoen. (2021) Update from the Norwegian Quality and Surveillance Registry for Cerebral Palsy. AUSCP-CTN The Australasian Cerebral Palsy Clinical Trials Network (AUSCP-CTN) 2021 International Hot Topics Research Forum , Zoom/Queensland 2021-03-05 -
  • Academic lecture
    Hollung, Sandra Julsen. (2021) In Norway and world-wide, how have registers of cerebral palsy been used to improve the lives of individuals with cerebral palsy?. Barnehabiliteringen, Sykehuset i Vestfold 2021 Vestfold fagforum , Tønsberg 2021-11-24 -
  • Academic lecture
    Alriksson-Schmidt, Ann I.; Hägglund, Gunnar; Hollung, Sandra Julsen; Ahonen, Matti; Andersen, Guro Lillemoen; Eggertsdottir, Guðbjörg. (2021) Treatment of spasticity in children and adolescents with cerebral palsy in northern Europe: a CP-north registry study. American Academy for Cerebral Palsy and Developmental Medicine , Virtual 2021-10-06 - 2021-10-09

2020

  • Lecture
    Stadskleiv, Kristine; Andersen, Guro Lillemoen; Hollung, Sandra Julsen. (2020) Resultater fra kvalitetsforbedringsprosjektet i 2019 for å øke andelen barn med CP som blir utredet kognitivt. RHABU Helse Sør-Øst Regional habiliteringskonferanse , Fornebu 2020-02-10 - 2020-02-11
  • Academic lecture
    Stadskleiv, Kristine; Andersen, Guro Lillemoen; Hollung, Sandra Julsen. (2020) Children with cerebral palsy: Parental perceptions of the usefulness of neuropsychological assessments. European Academy of Childhood Disability 32nd European Academy of Childhood Disability , Virtual (Poznan) 2020-11-25 - 2020-11-28
  • Academic lecture
    Hollung, Sandra Julsen; Vik, Torstein; Andersen, Guro Lillemoen. (2020) Prevalence and severity of children with cerebral palsy born in Norway to immigrant mothers. American Academy for Cerebral Palsy and Developmental Medicine 2020-09-23 - 2020-09-26
  • Academic lecture
    Hollung, Sandra Julsen; Hägglund, Gunnar; Gaston, Mark; Møller‐Madsen, Bjarne; Alriksson‐Schmidt, Ann; Andersen, Guro Lillemoen. (2020) Prevalence and severity of individuals with cerebral palsy in Scandinavia and Scotland, a CP‐North study. American Academy for Cerebral Palsy and Developmental Medicine 2020-09-23 - 2020-09-26

2019

  • Poster
    Hollung, Sandra Julsen; Bakken, Inger Johanne Landsjøåsen; Wiik, Robert; Vik, Torstein; Andersen, Guro Lillemoen. (2019) Comorbidities among children and youths with cerebral palsy in Norway. EACD 31st Annual meeting of the European Academy of Childhood Disability , Paris 2019-05-23 - 2019-05-25
  • Academic lecture
    Hollung, Sandra Julsen; Lanzoni, Monica; Delobel, Malika; Ehlinger, Virginie; Kinsner‐Ovaskainen, Agnieszka; Himmelmann, Kate. (2019) How can data from the surveillance of cerebral palsy in Europe be useful for supporting health policies?. AACPDM American Academy for Cerebral Palsy and Developmental Medicine , Anaheim, CA 2019-09-18 - 2019-09-21
  • Academic lecture
    Hollung, Sandra Julsen; Bakken, Inger Johanne Landsjøåsen; Vik, Torstein; Wiik, Robert; Lydersen, Stian; Andersen, Guro Lillemoen. (2019) Cerebral palsy and comorbidities, a National Registry Study in Norway. AACPDM American Academy for Cerebral Palsy and Developmental Medicine , Anaheim, CA 2019-09-18 - 2019-09-21

2018

  • Academic lecture
    Hollung, Sandra Julsen; Vik, Torstein; Lydersen, Stian; Bakken, Inger Johanne; Andersen, Guro Lillemoen. (2018) Nedgang i forekomst og alvorlighetsgrad av cerebral parese i Norge. Norsk barnelegeforening Pediaterdagene 2018 , St. Olavs Hospital/NTNU Trondheim 2018-01-17 - 2018-01-19
  • Interview
    Hollung, Sandra Julsen; Thoresen, Marianne. (2018) Forekomsten og alvorlighetsgraden av cerebral parese har gått ned. NRK Dagsrevyen NRK Dagsrevyen [TV] 2018-06-13

2017

  • Academic lecture
    Hollung, Sandra Julsen; Vik, Torstein; Andersen, Guro Lillemoen. (2017) Comparison of young adults with cerebral palsy in Norway with and without epilepsy. AACPDM 71st Annual Meeting of the American Academy for Cerebral Palsy and Developmental Medicine (AACPDM) , Montreal 2017-09-13 - 2017-09-16
  • Academic lecture
    Hollung, Sandra Julsen; Vik, Torstein; Andersen, Guro Lillemoen. (2017) Time trends of children with cerebral palsy in Norway; a national register-based study. EACD 29th Annual Meeting of the European Academy of Childhood Disability (EACD) , Amsterdam 2017-05-17 - 2017-05-20
  • Academic lecture
    Vik, Torstein; Hollung, Sandra Julsen; Jahnsen, Reidun Birgitta; Andersen, Guro Lillemoen. (2017) Are minimal motor disability in children with cerebral palsy associated with specific, etiological risk factors?. EACD European Academy of Childhood Disability Annual Meeting , Amsterdam 2017-05-17 - 2017-05-20

2016

  • Academic lecture
    Raftemo, Anne Elisabeth Ross; Mahendran, Arani; Elkamil, Areej Ibrahim; Hollung, Sandra Julsen; Vik, Torstein; Andersen, Guro Lillemoen. (2016) The need for better evidence for the use of Botulinum toxin A (BoNT-A) in the treatment of children with CP: Lessons from Norway. AACPDM 70th Annual Meeting of the American Academy for Cerebral Palsy and Developmental Medicine (AACPDM) , Hollywood, Florida 2016-09-20 - 2016-09-24
  • Academic lecture
    Hollung, Sandra Julsen; Vik, Torstein; Andersen, Guro Lillemoen. (2016) Time trends in clinical characteristics and diagnostic measures of children with CP in Norway. AACPDM 70th Annual Meeting of American Academy for Cerebral Palsy and Development Medicine (AACPDM) , Hollywood, Florida 2016-09-20 - 2016-09-24
  • Academic lecture
    Pennington, Lindsay; Andersen, Guro Lillemoen; Kirby, Jennifer; Hollung, Sandra Julsen; Vik, Torstein. (2016) Prediction of speech intelligibility of children with cerebral palsy (CP) from characteristics at 2 years of age. ICPC 5th International Conference of Cerebral Palsy (ICPC) / 28th Annual Meeting of the European Academy of Childhood Disability (EACD) , Stockholm 2016-06-01 - 2016-06-04
  • Academic lecture
    Hollung, Sandra Julsen; Andersen, Guro Lillemoen; Wiik, Robert; Bakken, Inger Johanne; Vik, Torstein. (2016) What is the ”true” prevalence of cerebral palsy in Norway?. ICPC 5th International Conference of Cerebral Palsy (ICPC) / 28th Annual Meeting of the European Academy of Childhood Disability (EACD) , Stockholm 2016-06-01 - 2016-06-04
  • Poster
    Andersen, Guro Lillemoen; Hollung, Sandra Julsen; Vik, Torstein. (2016) Early markers of associated impairments in children with cerebral palsy (CP). ICPC 5th International Conference of Cerebral Palsy (ICPC) / 28th Annual Meeting of the European Academy of Childhood Disability (EACD) , Stockholm 2016-06-01 - 2016-06-04
  • Poster
    Ross Raftemo, Anne Elisabeth; Andersen, Guro Lillemoen; Mahendran, Arani; Elkamil, Areej Ibrahim; Hollung, Sandra Julsen; Vik, Torstein. (2016) Inequalities in access to treatment with botulinum toxin A (BoNT-A) of children with CP in Norway. Karolinska Institutet, Astrid Lindgren Children’s Hospital International Conference of Cerebral Palsy and other Childhood-onset Disabilities, Stockholm 1-4 June 2016 , Stockholm Waterfront Congress Centre 2016-06-01 - 2016-06-04

2015

  • Poster
    Hollung, Sandra Julsen; Andersen, Guro Lillemoen; Wiik, Robert; Bakken, Inger Johanne; Vik, Torstein. (2015) What is the prevalence of cerebral palsy in Norway?. AACPDM American Academy for Cerebral Palsy and Developmental Medicine (AACPDM) 69th Annual Meeting - , Austin, Texas 2015-10-21 - 2015-10-24

2014

  • Poster
    Andersen, Guro Lillemoen; Hollung, Sandra Julsen; Vik, Torstein. (2014) CEREBRAL MRI FINDINGS IN CHILDREN WITH CEREBRAL PALSY (CP) IN NORWAY. EAPS European Academy of Paediatric Societies (EAPS 2014) , Barcelona 2014-10-17 - 2014-10-21

2013

  • Poster
    Andersen, Guro Lillemoen; Hollung, Sandra Julsen; Vik, Torstein. (2013) Everyday challenges of adolescents with cerebral palsy. EACD European Academy of Child Disability (EACD) , Newcastle 2013-10-10 - 2013-10-12

2012

  • Academic lecture
    Hollung, Sandra Julsen; Andersen, Guro Lillemoen; Vik, Torstein. (2012) How is growth and nutrition assessed in European children with cerebral palsy?. ICPC 4th International Cerebral Palsy Conference , Pisa 2012-10-10 - 2012-10-13
  • Poster
    Hollung, Sandra Julsen; Andersen, Guro Lillemoen; Vik, Torstein. (2012) How is growth and nutritional status assessed in children with cerebral palsy (CP)? A cross-sectional survey in 17 European countries. American Academy for Cerebral Palsy and Developmental Medicine (AACPDM) , Toronto 2012-09-12 -
  • Poster
    Andersen, Guro Lillemoen; Hollung, Sandra Julsen; Vik, Torstein. (2012) Adolescents with cerebral palsy - how to prepare for the future?. CPUP - CPUP-uppföljningsprogram för cerebral pares CPUP dagarna 2012 , Malmö 2012-10-22 - 2012-10-23

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